My family, musings and life in the turtle pond

Posts tagged ‘vertigo’

Please tell me today is over!!!!!

SF Bernal Heights

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Today is not my day. not evenĀ  close. So I am going to give up and go to bed. It has been nothing but disaster after disaster and its gotten to the point that I am starting to have seizures and vertigo.

It started when I was supposed to go on a field trip. Well, here’s the thing. I am not supposed to go on field trips where I am not with an instructor. The instructor, however doesn’t seem to be aware of this. Its a hazard with my disability to be out without a staff member from my building. I am considered a fall risk.There is a reason that I live in special disabled housing!

so anyway, they didn’t want me going out, because I wasn’t going to school. And they delayed me until I was going to be late. A few minutes only though, so I wasn’t really stressing .I showed them the assignment on line and they gave me the community cell phone. (I’ll get back to the cell phone issue later)

But then I had a seizure on the bus. And after that, I got lost. I did eventually find the library, 10 minutes after everyone left!!! Not that I can blame them. It was great that they waited an hour. (An hour where I was wandering around 3 blocks away. ) Also, If I had ever heard the phone ringing I would have known my group was also trying to find me. Another problem with that…The person who left the message didn’t leave a call back number, so I had to call back all 28 numbers on the missed call list to find her. And of course after waiting for an hour they were fed up with me. I told them I’d make it up and explain to the instructor.

I’m just so frustrated!!!!!!! I try not to complain most of the time. and I try not to question “why me?” because all that ever does is take a lot of energy that I can’t afford to waste anymore. But I sometimes wonder about the assumtions people make and if not being able to meet with my group will hurt me. First is the assumption that all students can go on field trips. And the assumption that we all have cell phones. Or that we all have computer access when they make classes Tech enhanced. I mean, there were no accomodations madeĀ  for this trip. No one checked that I was allowed to go, arranged transportation, got me a helper to come with me,made sure I had a phone and the numbers of my group.So will they hold it against me that I was physically unable to do what they asked? Oh well. Now I know how to find Bernal Heights.

I am upset because I missed out on a fun project because my stupid health is failing, and I can’t do the things I want. I am worried that my grade will be affected by something I had no control over. Sometimes I just want my terminal illness to go away!! I just want to do the same things that everyone I know are able to do. I want to be a real city college student, not a make-a -wish. I want to live in real housing and be a good mom to my kids. I wish they were in a real building, not a community living center thats a step above a shelter, barely.

And because of the seizures I am getting a horrible headache. Actually, I had to stop this entry and start again after a break.I was actually crying, that’s how frustrated I got. I rarely get that upset. And it is already taking a physical toll on me. I have a few minutes to get myself together enough so that my kids don’t see me hurting again. They’ve seen enough trauma.

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