My family, musings and life in the turtle pond

Wow!

I really didn’t realize just how long it’s been since I’ve written anything! wow. Its been such a difficult year that I’m not surprised really.

i had twins, Lyle-Reese and Shylan, lost my Son Davi, and got my kidney. I have been out of work for over a year now. Except that i haven’t really been out because I am still doing substitute work and writing lesson plans.

My health has bounced around from very good to very bad to functional. And so many other things i can’t even remember them.

Women’s Art Power Surges in Asia.

 

 

 

Because I wasn’t there when Hannahlehe died. (Neuroblastoma, S4,age 13.)

 

Because  Davi (Jakie) Fought so hard

 

Because Annalynda (Brendalynne) is now 1.5 years NED

 

Because YY  doesn’t like chemo, and wants to go back to school with her friends.

 

 

 

I wear gold in September because my friend’s son is a Warrior,  two years NED.
(go Super Keegan!)

 

Because Childhood cancer is very often ignored.

 

Because most people think that childhood cancer gets as much funding as other cancers (it doesn’t)

 

Because I know That 46/7 is real, and touches way too many lives.

 

Because I know the struggle doesn’t end if the child survives.

 

Because I see the lasting scars long after Cancer goes away.

 

Because I have been there for the chemo, and the crying and the sick and yuckies.

 

Because in 20 years there has been only one new children’s chemo drug.

 

Because many children don’t get diagnosed till Stage three or 4, when it is much harder for desired outcomes.

 

Because Children matter and so does childhood cancer.

 

 

 

I don’t go Gold just to push a ribbon. I’m Not trying to give people “ribbon fatigue” and fight another cause. I do this because it is a real cause. It is cause I can put my spare energy into. It is a cause that I can give real examples of, having lost two children, and with 2 warriors. I also have the stories of many children at my center. So I can put a human face on the Statistics that I post. I try to spread REAL awareness, because many people don’t know the signs and symptoms of Childhood cancer. They don’t realize that its anything but rare (46 children a day diagnosed, 7 in the USA die every day). Understand, This is a cause close to my heart. I will always go gold for the children who have to fight the war against childhood cancer.

 

 

 

 

Just a random aside, I guess. I was given a wheelchair to use by the hospital. Don’t get me wrong, I’m grateful. But it’s too limiting for what I need. I am a very active person. And the chair is so heavy and difficult to maneuver that it’s slowing me way down. It is so big and clunky that it’s hard to transport. Its just hard to manage. And too heavey when I’m alone. It would be absolutely perfect if I didn’t go out a lot, or worked in a job where I wasn’t actually moving much.

But I teach preschool. I go out with friends, and I absolutely LOVE to ballroom dance. I need a chair that allows me to do that.

I found the ideal one. but there’s a catch. to have it adapted to what I need would cost almost $3,000. i don’t have that to spend. Not on a chair anyhow. But I was looking at others that might work and even the “cheap” ones are over $1000. WHY?

Safe Spirit journey

There is no good way to say it. My sweet little Origami folder died.He was barely 6 years old,loved his dino-snores,(dinosaurs)  and really didn’t have a chance. He was one of my adopted 4, the one who spent more time in the hospital than at home. It is amazing how often he managed to ignore everything that was going on in his life though. He was the sweetest child. He would intuitively know when someone else was hurting and give them the biggest hugs!!I am hoping that he will have a safe home to the great Spirit.

English: Origami Ninja Star

English: Origami Ninja Star (Photo credit: Wikipedia)

FaceBook & Donate Life… What A Team!.

FaceBook & Donate Life… What A Team!.

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